February 16th is the International WWOX Awareness Day and 2022 is our first year acknowledging a day for WWOX related syndromes.

 

The WWOX related WOREE and SCAR12 Syndromes are largely unknown to the general public and also the medical community. Our goal is to spread the word and raise awareness of the syndromes across the world.

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WWOX Awareness Day honours children around the world living with WWOX syndromes and those we have lost to these devastating diseases.

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Show your support by joining us on 16 Days of WWOX Awareness and learn more about the diseases related to this gene and our work at the WWOX Foundation

 

 who have lost to these devasta Ataxia-12).

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November 16 is World Sanfilippo Awareness Day. Now in its second year, this international day aims to spread awareness and spark conversations globally about Sanfilippo Syndrome.

World Sanfilippo Awareness Day honours children around the world living with Sanfilippo today, and those we have lost to this heartbreaking disease. It also honours the families of these precious children.

We'd love your help to acknowledge and share this important date. One of the best ways of starting a dialogue with your personal network is online via social media or offline at your child's daycare, school or your sporting club or workplace. 

You can show your support by:

• Sharing an image on social media in the lead up and/or on the day

• Adding the Facebook frame to your profile photo

• Changing your Facebook Cover photo to the logo

• Participating in the "Hands of Hope" viral challenge with hashtag #HandsOfHope & #WorldSanfilippoDay

Please feel free to download and share the posts below on your social media or find more resources here.