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About us


We are a global Foundation with branches in the United States and Australia.  Together we advocate and fund work aimed at enhancing the lives of patients affected by WWOX-related diseases.


  • To provide a support framework for families with children suffering from WWOX deficiency.

  • Fund researchers to pursue scientific research related to WWOX.

  • Connect WWOX patients with WWOX researchers and Industry Partners for ongoing clinical studies through our Patient Registry.

  • Assist researchers to better understand the phenotypic spectrum of WWOX patients.

  • Raise awareness to the general public and the medical community to allow quick and accurate diagnosis of WWOX related syndromes.

We Need Your Support Today!

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