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WWOX Foundation Australia

The WWOX Foundation (Australia) was founded by Johann Mentz and his partner Karla Sanjines in 2019, shortly after the birth of their daughter who was diagnosed with WOREE syndrome.   

They discovered other families facing these devastating syndromes associated with WWOX deficiency and together they formed the Foundation.

Soon the Foundation began to grow and fund the world's leading WWOX researchers.

The WWOX Foundation has continued to grow and is now global with a branch in the USA.  Together the WWOX Foundation is the premier non-profit funder of research into WWOX related diseases.

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Board of Directors

Johann Mentz

Johann Mentz

Director / Founder

Johann is the founder of the WWOX Foundation and is strategically involved with all scientific aspects related to WWOX research. He is 100% focused on working with the WWOX Foundation’s scientific advisory board, researchers and clinicians to find a cure for WWOX related syndromes such as WOREE and SCAR12. Johann comes from a strong technical background within the Information Technology industry. Johann lives in Sydney with his partner Karla and their beautiful daughter Lucia who suffers from WOREE Syndrome.

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David Cohen

Director / Public Officer

As the Founder and Managing Director of a successful Sydney, Australia-based IT Solutions company, David has many years of experience running a successful organisation. David’s success has been driven by a commitment to service, to excellence and to building rewarding, long-term initiatives. We are very appreciative to have David’s fiscal management skills and business acumen part of the WWOX Foundation to ensure ongoing success in our efforts to raise awareness and to find a cure for WWOX related syndromes.

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Nelma Arancibia

Director / Secretary

Nelma is an experienced Project Manager who has a very successful career within the Property industry across Australia. Nelma has particular skills in communication management, task prioritising and design coordination, focusing mainly in stakeholder management. As a strong program and project management professional she brings with her a wealth of skills to assist the WWOX Foundation to achieve its goals of furthering and funding WWOX related research and finding a cure of the devastating syndromes afflicting children born with mutations of the WWOX gene.

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